IDEAHL comprehensive protocol for obtaining qualitative information from European citizens on digital health literacy

Objective To design a comprehensive protocol for obtaining qualitative information from a wide range of population groups on digital health literacy (dHL). This protocol was used for the development of a European dHL Strategy. Study design protocol design. Methods An extensive review of existing literature and a collaborative design of the protocol was carried out involving dHL experts and strategic stakeholders in the definition of the different sections adapted to the specific characteristics of different population groups, including vulnerable groups. Results A description of all the sections of the protocol is provided, recruitment strategies with recommendations for each population group were included, general and specific-group questions for interviews were designed and participatory techniques for each group were identified. The protocol was successfully implemented in 10 European countries engaging a total of 1434 European citizens from 19 population groups. Conclusions This methodology is a novel protocol to be used by policy makers in the future development of national and regional dHL action plans. The protocol will facilitate the acquisition of qualitative information and new insights into barriers and suggestions for improvement in dHL, thereby advancing diversity, equity, and inclusion when capturing the nuanced lived experiences of diverse groups.